Life in the last few days

We came home late Tuesday night on the 9th of December. We had to have all of our ducks in a row to get ready to come home. Like having all the medicines that Adam would be on for a while and getting the delivery from HomeCare with his supplies. Bill picked up his meds from the pharmacy because we weren't going to get home until late.

The next day we started into our routine. We flush his PICC line and he takes his medicine. Sarah and Alyssa are here staying with us for a few days. She will be heading home tomorrow. Bill and Adam are going to take her home. Adam can ride in the car as long as he uses his mask and takes care not to expose himself to much. The ride was uneventful and they made it home with no trouble.

Friday was clinic day. The nurse coordinator met us in the lobby of the clinic and went over some material with me. Adam got checked out by Dr. Aly and then Dr. Saloman came in and looked him over. He did two meds via his PICC line and got some Ativan for nausea. He took a little nap while we were at clinic. He was pretty bummed out that he couldn't drive home but with the Ativan in his system, I wouldn't chance it.

We stopped by his dad's work and picked up a present from Erin's mom. She sent Adam six pints of Graeters ice cream (chocolate chip cookie dough, his favorite ice cream!) He couldn't wait to start into it and ate half of one container before we got home. He loved it!

Friday night Adam went to visit his friend John. These boys are so close and such good friends. John's mom said that John was so worried about Adam that it was hard for him to get anything done. The boys are six days apart in age so they are very close friends. They just sat in John's room and talked to a couple of their friends.

Saturday, Adam went to a friend's house for a while. I think that he may have overdone it a little because he was really tired when he got back. Fatigue is becoming a factor, I think, and Adam needs to take it a little more slowly until he knows what he is up against.

Sunday was a "yuck" day. Adam was tired from Saturday and wasn't feeling well. He got very nauseated. I gave him the Ativan so that it would help him to not be so sick. I'm hoping that he doesn't have very many of these kind of days. It's not fun for him and honestly, just makes me worry about him more.